The Brain Surgery Experience
Why This Is Here
[UPDATE: First, yes, I’m still here and I will answer any notes I get. Second, not mentioned in the original story is that I had one seizure, 18 months after my surgery. My advice: don’t drink a beer and immediately go to bed if you’ve ever had brain trauma, like surgery. All three, sleep, alcohol and brain surgery, lower your threshold for a seizure. Keep ’em separated!]
I decided to put this site together mostly for the fun of doing it. That said I also wanted to do it because when I found out I would need brain surgery I wanted to read about the overall patient experience and I couldn’t find anything similar to my situation. I decided long before the actual surgery that I wanted to document as much of it as I could. Originally, I wanted to post to a web log as the events took place, but for a variety of reasons that wasn’t as practical as I would’ve hoped. I figured I would write down anything and everything that I could remember. As a result this site is fabulously long-winded and self-indulgent.
Another reason I wanted to put this site together is because in addition to having a relatively rare collection of brain tumors (two) I also had the rare luxury of videos and image stills of my own brain. My doctors decided to document much of the actual surgery because, if I remember correctly, they could find only one similar case previously documented.
I’m hopeful that some people will find at least some parts of this site interesting and relevant. If you’re bald, in need of brain surgery for a dermoid cyst, a colloid cyst, some other benign tumor then odds are you will. Seriously though, I hope this site will be able to give some people in similar situations a better idea of what to expect. There are so many different reasons for brain surgery that it’s almost impossible to make generalizations. Some people have cancer, or tumors in different parts of the brain and even the treatments for similar situations can be very different. Please remember when you’re reading through this site that this is just my account of my specific situation.
If you have any questions or comments please feel free to contact me. I hope you find my story helpful in some way. I recommend that people also visit the very active Brain Talk community. This is especially true if you are interested in conditions unlike mine. I wish I had discovered Brain Talk before my surgery.
Good luck in your search for answers and I wish you the best in whatever challenges you may be confronting.